“It’s hard to live well when we’re being deprived from basic rights like a shower.” When Tom and Charlotte first moved in together, they had a vast and dedicated support network. A range of healthcare professionals and accurate information on their conditions. Now, they feel alone. Access to support and equipment is challenging and information is sometimes wrong. "We’re not asking for luxuries — we’re asking for the basics. To live safely. To contribute." Learn about Tom and Charlotte's story ▶️
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“It’s hard to live well when we’re being deprived from basic rights like a shower.” When Tom and Charlotte first moved in together, they had a vast and dedicated support network. A
Muscular Dystrophy UK. . “It’s hard to live well when we’re being deprived from basic rights like a shower.” When Tom and Charlotte first moved in together, they had a vast and dedicated support network. A range of healthcare professionals and accurate information on their conditions. Now, they feel alone. Access to support and ...
3.2K views7 months ago
Muscular Dystrophy Symptoms
What Muscle Weakness Signs Point To Muscular Dystrophy?
3:36
What Muscle Weakness Signs Point To Muscular Dystrophy?
YouTubeMuscular Dystrophy Support
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Muscular Dystrophy Explained | Special Education |
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Muscular Dystrophy Explained | Special Education |
YouTubeRohit Jasuja
13 views2 months ago
How To Spot Muscle Weakness Symptoms Of Muscular Dystrophy? - Muscular Dystrophy Support Network
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How To Spot Muscle Weakness Symptoms Of Muscular Dystrophy? - Muscular Dystrophy Support Network
YouTubeMuscular Dystrophy Support
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Top videos
Our new Muscles Matter podcast is out now🎙️ Guests Charlotte Hardwick and Stewart Ross, both living with a muscle wasting condition, discuss their experiences of diagnosis and the support made available following this. The episode explores what an ideal diagnosis and support scenario might look like, and the support they’ve found most useful. Listen here: https://loom.ly/Byk3gyA | Muscular Dystrophy UK
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Our new Muscles Matter podcast is out now🎙️ Guests Charlotte Hardwick and Stewart Ross, both living with a muscle wasting condition, discuss their experiences of diagnosis and the support made available following this. The episode explores what an ideal diagnosis and support scenario might look like, and the support they’ve found most useful. Listen here: https://loom.ly/Byk3gyA | Muscular Dystrophy UK
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744 views7 months ago
We’ve already made advances that would have been unthinkable 10 years ago, and we’re determined to go even faster. We campaign to break down barriers and fundraise for breakthroughs in research. Our #MusclesMatter. Join Us. Together we can make a difference. Stay up to date on treatments and research via our monthly newsletter: https://tinyurl.com/yc28fbfu | Muscular Dystrophy UK
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We’ve already made advances that would have been unthinkable 10 years ago, and we’re determined to go even faster. We campaign to break down barriers and fundraise for breakthroughs in research. Our #MusclesMatter. Join Us. Together we can make a difference. Stay up to date on treatments and research via our monthly newsletter: https://tinyurl.com/yc28fbfu | Muscular Dystrophy UK
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230 viewsJul 17, 2023
Its Day two of our Double your Donation campaign! Here is a video from Jon Richardson to explain more | Muscular Dystrophy UK
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Its Day two of our Double your Donation campaign! Here is a video from Jon Richardson to explain more | Muscular Dystrophy UK
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33 viewsNov 29, 2023
Muscular Dystrophy Treatment
Gene replacement therapy for Duchenne Muscular Dystrophy (DMD): New documentary from UC Davis Health
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Gene replacement therapy for Duchenne Muscular Dystrophy (DMD): New documentary from UC Davis Health
YouTubeUC Davis Health
20.1K viewsDec 20, 2024
Advancements & Challenges in Muscular Dystrophy Treatment | AJMC
Advancements & Challenges in Muscular Dystrophy Treatment | AJMC
ajmc.com
11 months ago
John-John's Journey: Treating Duchenne Muscular Dystrophy (DMD) with Gene Replacement Therapy
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John-John's Journey: Treating Duchenne Muscular Dystrophy (DMD) with Gene Replacement Therapy
YouTubeUC Davis Health
29.8K viewsDec 19, 2024
Our new Muscles Matter podcast is out now🎙️ Guests Charlotte Hardwick and Stewart Ross, both living with a muscle wasting condition, discuss their experiences of diagnosis and the support made available following this. The episode explores what an ideal diagnosis and support scenario might look like, and the support they’ve found most useful. Listen here: https://loom.ly/Byk3gyA | Muscular Dystrophy UK
0:41
Our new Muscles Matter podcast is out now🎙️ Guests Charlotte Hardwick and Stewart Ross, both living with a muscle wasting condition, discuss their experiences of diagnosis and the support made available following this. The episode explores what an ideal diagnosis and support scenario might look like, and the support they’ve found most useful. Listen here: https://loom.ly/Byk3gyA | Muscular Dystrophy UK
744 views7 months ago
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We’ve already made advances that would have been unthinkable 10 years ago, and we’re determined to go even faster. We campaign to break down barriers and fundraise for breakthroughs in research. Our #MusclesMatter. Join Us. Together we can make a difference. Stay up to date on treatments and research via our monthly newsletter: https://tinyurl.com/yc28fbfu | Muscular Dystrophy UK
0:07
We’ve already made advances that would have been unthinkable 10 years ago, and we’re determined to go even faster. We campaign to break down barriers and fundraise for breakthroughs in research. Our #MusclesMatter. Join Us. Together we can make a difference. Stay up to date on treatments and research via our monthly newsletter: https://tinyurl.com/yc28fbfu | Muscular Dystrophy UK
230 viewsJul 17, 2023
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Its Day two of our Double your Donation campaign! Here is a video from Jon Richardson to explain more | Muscular Dystrophy UK
0:43
Its Day two of our Double your Donation campaign! Here is a video from Jon Richardson to explain more | Muscular Dystrophy UK
33 viewsNov 29, 2023
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"Nothing's ever easy. We've always got to fight to get access to anything." Jack is 9 years old and lives with Duchenne muscular dystrophy. He is a part time wheelchair user, which means accessible housing is a necessity. In their previous home, Jack's father Joe, who is blind, had to carry him up and down the stairs for months while they were fighting for an accessible property. Joe said: "It is few and far between that you can get somewhere that is suitable for a wheelchair user. "If we had ac
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"Nothing's ever easy. We've always got to fight to get access to anything." Jack is 9 years old and lives with Duchenne muscular dystrophy. He is a part time wheelchair user, which means accessible housing is a necessity. In their previous home, Jack's father Joe, who is blind, had to carry him up and down the stairs for months while they were fighting for an accessible property. Joe said: "It is few and far between that you can get somewhere that is suitable for a wheelchair user. "If we had ac
3.7K views6 months ago
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Every day counts when you’re living with a rare and often life-limiting muscle-wasting condition. You can often feel isolated and alone. At Muscular Dystrophy UK, we | Muscular Dystrophy UK
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Every day counts when you’re living with a rare and often life-limiting muscle-wasting condition. You can often feel isolated and alone. At Muscular Dystrophy UK, we | Muscular Dystrophy UK
Jan 13, 2019
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Muscular Dystrophy Nursing Diagnosis & Care Plan - NurseStudy.Net
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Muscular Dystrophy Nursing Diagnosis & Care Plan - NurseStudy.Net
Nov 29, 2024
nursestudy.net
"It's just one other postcode and it's changed everything." Stewart lives with inclusion body myositis (IBM). When he moved 11 miles from England to Wales, everything changed. Three years later, he is still on a waiting to list to be seen about his condition. "They didn't want to know me to start with in Wales. I didn't get a neurologist. I didn't see anybody." As part of our new ten-year strategy, we will campaign and influence the NHS to end the postcode lottery. Learn more about Stewart's sto
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"It's just one other postcode and it's changed everything." Stewart lives with inclusion body myositis (IBM). When he moved 11 miles from England to Wales, everything changed. Three years later, he is still on a waiting to list to be seen about his condition. "They didn't want to know me to start with in Wales. I didn't get a neurologist. I didn't see anybody." As part of our new ten-year strategy, we will campaign and influence the NHS to end the postcode lottery. Learn more about Stewart's sto
1.2K views6 months ago
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Muscle wasting conditions don't discriminate. They can affect anyone. In different ways, physically and emotionally. No matter their age, race or gender. Despite this, those in the muscle wasting community are powerful, strong and resilient. They face challenges but overcome them. #InternationalDayofPersonsWithDisabilities | Muscular Dystrophy UK
2.5K views5 months ago
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"There are a lot of people out there that can give you support." Visit one of our free information days in Scotland and England. You can expect practical advice, expert insight, and a welcoming space to connect with others Find out more and sign up: ▶️ London: musculardystrophyuk.org/london ▶️ York: musculardystrophyuk.org/york ▶️ Birmingham: musculardystrophyuk.org/birmingham ▶️ Scotland: musculardystrophyuk.org/scotland | Muscular Dystrophy UK
762 views8 months ago
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Today marks the beginning of a new chapter. We’re launching our bold ambitious ten-year strategy to transform the lives of people living with muscle wasting conditions. Over the next decade, we’ll be focusing all our energy and efforts on four strategic goals: 🧡 Transforming diagnosis – speeding up and improving the accuracy of diagnosis. 👥 No one faces their journey alone – ensuring support from day one 🧬 New treatments, universal support – accelerating the development of new treatments and
4.6K views8 months ago
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MDUK-funded research by Professor Eric Schirmer and his team at the University of Edinburgh sheds light on our understanding of Emery-Dreifuss muscular dystrophy and offers potential avenues for treatments. This MDUK-funded research investigated the way cells work in people with EDMD. The results show that there are specific ways in which the cells of people with EDMD function differently. With this new understanding of the complexities of EDMD, researchers are one step closer to developing ther
189 viewsMar 31, 2023
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Inspired to make a difference 🧡 Martin Hywood is joined by Carmela Chillery-Watson MBE and Chris Stennett, who have both been inspired to do some incredible activities to raise awareness about muscle wasting conditions. They share their highlights, what’s up next for them, where their inspiration comes from, and tips for anyone wanting to start up a fundraising/awareness activity – however big or small. Listen here: https://loom.ly/Byk3gyA | Muscular Dystrophy UK
945 views8 months ago
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💥 We’ve invested £2 million in new research – thanks to your support. This marks our third consecutive year of increased funding, backing 13 pioneering projects that aim to deepen understanding, improve care, and explore new treatments for people living with muscle wasting and weakening conditions. This year’s projects include: 🔬 Our first-ever investment in VCP multisystem proteinopathy type 1, a rare and often overlooked condition 🎓 Double the support for PhD students, helping train the nex
1.3K views8 months ago
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🚨One donation. Twice the impact. 🚨 This week, your generosity goes twice as far. Every pound you donate will be doubled by our donors and trusts. Help us fund research into more treatments for muscle wasting conditions. Together we can change the future of muscle wasting conditions. Double your impact and make a difference today: https://loom.ly/3b4wqR4 | Muscular Dystrophy UK
3.5K views5 months ago
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🎙️ Our latest Muscles Matter podcast is out now! We look at the impact winter has on the lives of people living with a muscle wasting condition, how hobbies and connections can help navigate these challenges, and share advice for those who find winter tough ❄️ We're joined by two great guests this episode: Morvenna, who lives with adult-onset myofibrillar myopathy and Aaron, who lives with Duchenne muscular dystrophy. The podcast is hosted by Martin Hywood, who also lives with a muscle wasting
629 views3 months ago
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There are 250,000 people living with Duchenne muscular dystrophy around the world, including 2,500 in the UK. Today on World Duchenne Awareness Day support families affected by Duchenne muscular dystrophy by sharing red balloons across social media. Find out more about Duchenne musuclar dystrophy >> http://qoo.ly/hkkdc. | Muscular Dystrophy UK
22.8K viewsSep 7, 2017
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2024/25 was jam-packed. We continued to increase the impact of our research, services and influencing work. We finish this year once again proud of our wonderful community. Our research partners, support services and funders, volunteers, fundraisers, staff and trustees. Here's a taste of what we achieved together 👇 Read our full impact report here: https://loom.ly/ZY9JfOk | Muscular Dystrophy UK
280 views6 months ago
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🎙️Our latest Muscles Matter podcast is out now. Sisters Cadi and Cerys, who live with limb girdle muscular dystrophy, and Leanne, a mother who lives with FSHD as does both her daughters, speak about their experiences of having several members of their families living with muscle wasting conditions. 👥 How this affects relationships 📈 Different levels of progression 🧡 Sharing support with one another Listen here: https://loom.ly/Byk3gyA | Muscular Dystrophy UK
701 views6 months ago
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Myasthenia gravis treatment approved for NHS use in England - Muscular Dystrophy UK
3 weeks ago
musculardystrophyuk.org
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Muscular Dystrophy UK - BBC Lifeline Appeal
8.2K viewsApr 17, 2015
YouTubeMuscular Dystrophy UK
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🌄 The UK’s ultimate tri‑format challenge - teams of two or four. Paddling kit provided; signed & marshalled routes. 🚴 Cycle 21 miles of smooth tarmac roads 🚣 Paddle 2 miles - power every stroke 🏔 Hike 11 miles to summit Helvellyn 🥘 Food included – all meals covered 💥 Limited early-bird spots – book now! 👉 Gather your team of two or four and take on the challenge. No excuses. Limited places. Sign up now. | Muscular Dystrophy UK
5.1K views4 months ago
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Thank you so much to everyone who made this year's MDUK National Conference in Birmingham such a success! Special thanks Michael Attenborough for giving out the Pres | Muscular Dystrophy UK
2.7K viewsOct 11, 2017
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Today the issue of equal access to Givinostat for people with Duchenne muscular dystrophy (DMD) was raised in UK Parliament. Givinostat has the potential to slow progression of DMD, but right now, it is inaccessible for many. We are calling for the Government to help end this postcode lottery. | Muscular Dystrophy UK
2.2K views10 months ago
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Nominations for our Stronger Together Awards are closing soon! ⏰ Now is your chance to recognise and honour the strength and diversity of the incredible muscle wasting community. From researchers and fundraisers to volunteers, carers and healthcare professionals. 🏅 📆 Nominations close Friday 31 October 2025. Every nomination celebrates the outstanding people who make our community stronger. View our award categories and nominate here: https://loom.ly/aSN9F1I | Muscular Dystrophy UK
581 views7 months ago
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Thank you from all of us at Muscular Dystrophy UK to the family fund - Congenital Myotonic Dystrophy Fight Fund. Since launching one year ago the Congenital Myotoni | Muscular Dystrophy UK
1.4K viewsOct 27, 2016
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Muscular Dystrophy UK on Reels
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Muscular Dystrophy UK on Reels
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Muscular Dystrophy UK on Reels
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Nominations for our annual President’s Awards are now open. Help us to celebrate the strength and diversity of the incredible muscle wasting and weakening community - from research, support and campaigning to volunteering and fundraising. Gabby Logan, our charity President, invites you to nominate the people who give their all to make a difference for those living with a muscle wasting and weakening condition. Find more information on our website: https://www.musculardystrophyuk.org/our-presiden
629 viewsApr 12, 2024
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