About 30,800 results
Open links in new tab
  1. Financial Assistance For Patients With Rare Diseases | NORD

    NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already …

  2. How NORD Can Help - Resources, Financial Support, & More

    Help with Rare Disease Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is …

  3. Contact Us - National Organization for Rare Disorders

    Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email …

  4. Rare Disease Research Grant Program | NORD

    Explore NORD's research funding opportunities and submit innovative proposals advancing rare disease understanding, treatment, and potential breakthrough discoveries.

  5. Patient Assistance Programs - National Organization for Rare …

    Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …

  6. What You Should Know About Undiagnosed Rare Diseases | NORD

    NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …

  7. Rare Disease News - National Organization for Rare Disorders

    5 days ago · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.

  8. Getting Started - Understanding Rare Disease Information | NORD

    Home / Understanding Rare Disease We acknowledge the hard work of families, caregivers and others with programs like NORD Caregiver Respite which allows people some time away while …

  9. Patient Organizations - National Organization for Rare Disorders

    Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.

  10. Pfeiffer Syndrome - Symptoms, Causes, Treatment | NORD

    Jul 25, 2023 · Learn about Pfeiffer Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources